"Take chances. Make mistakes. Get messy." Ms. Frizzle, The Magic School Bus

Monday, March 14, 2011

Is "obtuse" a defense?

If I receive many more obtuse reactions to our special needs, I may have more problems than just being poor.

Answer: "What about going to the park?"

My Question: What about respite care this summer? School will be out and I don't think I can handle her alone all day every day all summer. [As I described this concern, "The Lady in Pink" was chanting a phrase, frantically, increasing to shrieking, then slapping herself in the face and writhing on the floor, all with so much noise the Exceptional Needs representative from our health provider could barely hear me and commented that she would need respite care too after a couple hours of that]

....................OH SURE! THE PARK! Why didn't I think of that??? Since I am poor that must mean I am dumb too!

The only more insulting thing I've heard lately is when the social services interviewer had a light bulb moment after I told her I have an English degree and used to be a professional marketing communications specialist.

"Hey, I know!" she said, trying to brainstorm how I could magically fit earning a living wage in between picking up and dropping off "The Lady in Pink" from her tight schedule of schools and therapy appointments, "you could write a book about your experiences being a single mom with an autistic child."

[Hey, why didn't I ever think of that??? I could just write a book! Something most people can barely do with all the time in the world on their hands, and a full night's sleep, and quiet--and then I'm sure once I'm done with it and type THE END, that publishers will just knock on my door, right? And in the meantime, we could live in my stationwagon, while I write the book, that is supposedly the financial answer to all of my IMMEDIATE food, medical and housing emergencies.]

Why is the goal of every government and charity service involve trying to get me "back out there" and getting my "life back together?" My life is not broken. My child has autism. I am a single parent. I have no family or financial resources. I don't need job training or parenting classes. I just need HELP.

It is clearly a problem of logistics. There is only ONE of me. And that ONE has to take care of "The Lady in Pink," and "The Lady in Pink" has a full schedule, with the end goal being that she will one day live independently and I can finally just take a nap!

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