Apparently a categorically needy child can get great healthcare, but look out if that child becomes disabled! Then all medical coverage is stripped away and replaced with 'imaginary' coverage known as 'open card.' This means that in the eyes of Medicaid you have all the coverage you want--except for the small problem that no clinic or doctor in the state accepts 'open card' on a new patient.
Excuse my language, but--
WHAT THE FUCK!
This is how we in the USA treat our disabled and poverty-stricken kids???
I'm a single parent of an autistic child who needs a regular doctor and therapies. I can't just run out and grab any old job due to the basic logistics: that I am only one person; I can only earn one income; how can I earn an income at a full time job while ferrying my child around to therapies?; and, how would my child get those therapies if she was stored in a daycare center full time because I have to be at a job full time so that I can get health insurance so that she can see drs and get therapies?
Any way I look at it, there is no way for a single parent of a disabled child to get the child the medical help that the child needs.
I think the best thing for my disabled child is to GET OFF OF SSI, which is ironic. SSI has been the worst thing that could have happened, besides the autism. If I would have known, I NEVER would have applied.
UPDATE: I found out how the "open card" thing works. Can't use it at the door anywhere, but gotta find a back door. A doctor can decide to take it or not. So have to get past the bitch at the front desk who will just flatly tell everyone "NO" and act like it's their policy. It's not a "CAN'T," it's a "WON'T." See, they "CAN," if you can find a way to get another doctor to make a call, or a friend/family to ask their own doctor on your behalf, etc. It's all about who you know. Luckily, I have some good connections to work with and good communication skills. But what about those who don't? What about the single moms out there with disabled kids who don't have family help or education or communication skills? For sure they are the most vulnerable in our society. But for my college degree and writing skills and absence of drug/alcohol addiction and having all my teeth, I'm nearly there, and can tell you it's a scary place to be.
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